Awareness – Retinoblastoma – For Nico Movement

Will Lukang, CLDC, CSM, PMP, MASCL

Let us help make things happen for Nico

In December 2009, I embarked on blogging with the purpose of sharing my knowledge and experience, hence the name inspiring others to act.  I did it because I believe that if I can only help one person, I will have done my job already.

In the last few years, I connected with people who read my blog and thanked me for sharing my knowledge and experience and encouraged me to continue.   There were also requests for blog topics along the way.    On numerous occasions, I ran into some folks who mentioned that they followed my blog.  Honestly, I did not know how to react to the complement, but I thanked them for following and suggested that they share it with their friends.

It is my opinion awareness is the key to uncovering the unknown, thereby shedding some light and educating us.   At which point we’ll have to decide what we do with the new-found knowledge.    With that said, at our recent Cornerstone meeting, my friend Kevin shared that his friend’s son has a rare eye cancer.   My heart sank upon hearing the story.   The boy’s name is Nico Santoli and he is 22 months old.  He was diagnosed with unilateral retinoblastoma, a rare childhood cancer of the eye.    For more information about retinoblastoma, please visit National Library of Medicine.  For more information about Nico, please visit For Nico.

Why am I blogging about this?  I’m doing this to accomplish two key goals.  First, raise awareness and perhaps help others uncover and save a young child’s life.  Secondly, help raise funds to pay for Nico’s medical bills.  To make donation, please see information below.

NICO M. SANTOLI CANCER SUPPORT
992 Oradell Ave Oradell NJ 07649
http://www.indiegogo.com/ForNico?a=1726253
or  buy some toys and 20% of the purchases from this page go to my sons cancer support http://www.discoverytoys.com/ForNico

I promised Kevin that I’ll use the power of social media to help Nico and other children live their life to the fullest.   Together we can make it happen.   It takes a community to come together to make things happen.  I hope you’ll help me spread the word.  I urge you to share or contribute.  Thanks in advance for your help.

Prince Amukamara supporting For Nico

Chase Blackburn supporting For Nico

Bear Pascoe and Corey Webster supporting For Nico

Thankful

Will Lukang, CLDC, PMP, CSM, MASCL

Life often finds a way to teach us a lesson.  Hurricane Sandy impacted a lot of lives.  Many are still picking up the pieces and trying to recover their houses and belongings.  We came out of it just losing power for almost nine days and I learned a lot about myself and my team.  For my children, they gained a sense of appreciation of the absence of electricity and were able to spend more time with each other rather than being preoccupied the IPad and IPhones.   The cold chill nights were harder for our children than us.  After a week, we managed to stay warm by turning on the gas fireplace.  I wonder what took me so long to figure that out.

The incident required me to step up and take care of work-related items while the storm passed through that night.   I learned a valuable lesson of mediating and facilitating the recovery in spite of the fact that I don’t have all the answers.  I stayed calm and directed the team as we moved from one stage to another.  24 hours later we got the job done.  A significant accomplishment considering the odds that were in front of us: the two key resources who knew what needed to be done had no power and we lost contact with them.

For two weeks, it seem like each day went by so fast because I was working long hours, if not round the clock.  As I gained some normalcy, I started looking for ways to help those people affected by the storm. I participated in a couple of initiatives as a way to show my appreciation for my blessings.

Each day I hear stories of the devastation that other people had to face.  As the year comes to a close, I’m thankful for the following:

  1. My wife and my two daughters for being my sources of inspirations
  2. My extended families for being there for us
  3. My close circle of friends for being a constant source of joy
  4. My team at work for inspiring me to be a better leader each day.  They energize me to push myself to learn and develop to be able to serve them
  5. My Lead Change co-authors for allowing me to participate in the wonderful journey that culminated in the publishing of the Character-Based Leader book.
  6. My Knights of Columbus brothers for inspiring me to focus on our primary principle of charity
  7. My Cornerstone brothers for allowing me to participate in the journey of getting to know one another
  8. My tweeter and blog followers who inspire me to continue to tweet and write to share my stories and experience
  9. And last but not the least, the gift of a brand new day.

 

I’ll close my blog with this message

May the worries of the past remind you of the things you have endured to get to your current state.

May tomorrow bring new hope that opportunity is waiting around the corner.

May you invest the time to develop yourself and spend time on what is important to you.

May you never put things off because there always tomorrow.

May you live the life you want and not that of what others want to see in you.

May you find comfort that you’re not the only one going through challenges in life.

Enjoy your life, invest in yourself and don’t forget that tomorrow is not guaranteed to be there.

 

May you have a Happy Thanksgiving!